Research Data Management

• On Designing a Web-Based Clinical Research Data Management System. Seminar presented to the Dept. of Health Evaluation Sciences Research Conference, UVa, 26Sep01; updated 4Oct01. Click here for 4-per-page handouts. Elaborations of some of the design details may be obtained here.
• A possible http://www.r-project.org R script for specifying metadata for a database
• Tangram and object-oriented applications with relational databases
• Web site for the multi-country INVEST study run by the Division of Biostatistics at the University of Florida, the largest clinical trial ever run solely using the Internet
• Description of the MarCon system for electronic clinical trials
• Databases and the Web by David Drake of UVa ITC
• Resource site for finding measurement instruments for health research
• Open Infrastructure for Outcomes - UCLA -- Flexible and Secure Information System for Clinicians and Researchers
• TheMetaclinicDatabaseSystem.htm: Web-based Metadata driven Research Databases
• Metaclinic Demo Database site - Vanderbilt Ingram Cancer Center - Use username/password - demo/demo
• http://www.phosco.com PhOSCo - and open-source clinical trials electronic data capture system. See http://www.phosco.org and RdmGroup for more information.
• Some issues in research data management for principal investigators, and current recommendations
• OpenClinica released version 2.0.1 in March 2007. OpenClinica appears to be a growing and viable product.
• Rhubarb is a Ruby on Rails application that is a data capture tool for the web. Under development by Jeremy Stephens and others.

Vanderbilt research database discussion group