References from CSP 2021 presentation, "Solving Real-World Problems, or Making Them Worse? The Collection and Analysis of Race Data" (Lauren Samuels)

• Article on 2018 WSDS presentation "Preparing for Increased Gender Diversity and Inclusion in Statistics and Data Science: Important Perspectives from Gender Non-Conforming and LGBTQ+ Scholars": Thornton, S., Green, B., & Benn, E. (2019). Friends and allies: LGBT+ inclusion in statistics and data science. Significance, 16(3), 39–41. http://doi.org/10.1111/j.1740-9713.2019.01280.x

• Human race as social rather than biological construct; ancestry testing
  • Roberts, D. FATAL INVENTION: HOW SCIENCE, POLITICS, AND BIG BUSINESS RE-CREATE RACE IN THE TWENTY-FIRST CENTURY (The New Press, 2011). (quote in slides is from p.129)
  • Saini, A. Superior: The Return of Race Science (Beacon Press, 2019).
  • Wilkerson, I. Caste: The origins of our discontents (Random House, 2020).
  • Templeton, A. R. (2013). Biological races in humans. Studies in History and Philosophy of Biological and Biomedical Sciences, 44(3), 262–271. http://doi.org/10.1016/j.shpsc.2013.04.010
  • https://ghr.nlm.nih.gov/primer/dtcgenetictesting/ancestrytesting
  • https://www.vox.com/science-and-health/2019/1/28/18194560/ancestry-dna-23-me-myheritage-science-explainer

• Pew Research Center materials on U.S. census history
  • https://www.pewresearch.org/interactives/what-census-calls-us/

• OMB standards for maintaining, collecting, and presenting federal data on race and ethnicity
  • https://obamawhitehouse.archives.gov/omb/fedreg_1997standards
  • https://www.govinfo.gov/content/pkg/FR-1997-10-30/pdf/97-28653.pdf
  • https://www.federalregister.gov/documents/2016/09/30/2016-23672/standards-for-maintaining-collecting-and-presenting-federal-data-on-race-and-ethnicity
  • https://grants.nih.gov/grants/guide/notice-files/not-od-15-089.html

• Quotes on the terms "race" and "ethnicity"
  • Ann Morning: https://www.pewresearch.org/fact-tank/2015/06/18/census-considers-new-approach-to-asking-about-race-by-not-using-the-term-at-all/
  • Francis Collins: Collins, F. What we do and don't know about 'race', 'ethnicity', genetics and health at the dawn of the genome era. Nat Genet 36, S13–S15 (2004). https://doi.org/10.1038/ng1436

• All of Us program
  • Overview: https://allofus.nih.gov/about
  • Demographic survey: https://allofus.nih.gov/sites/default/files/aou_ppi_basics_version.pdf

• Things to consider in addition to race: Wilkins, C. H., Schindler, S. E., & Morris, J. C. (2020). Addressing Health Disparities Among Minority Populations. JAMA Neurology. http://doi.org/10.1001/jamaneurol.2020.1614